AMRC and Muscular Dystrophy Campaign respond to mitochondrial donation enquiry
We’ve put together a joint response to the Nuffield Council of Bioethics’ enquiry into the ethics of techniques to prevent mitochondrial disease.
We’ve put together a joint response to the Nuffield Council of Bioethics’ enquiry into the ethics of techniques to prevent mitochondrial disease.
December 8, 2011 by beckypurvis
Last night the Lords had a discussion of the Health Research Authority (HRA)- the new single regulator of health research across the UK which got up and running last week. They asked about the timeline for establishing the HRA as a non-departmental public body with regulatory power across the UK, exploring the functions the HRA… [Read more…]
November 18, 2011 by beckypurvis
I mentioned the Lords were discussing the government’s plans for the Health Research Authority (HRA) on Tuesday afternoon. It was a short discussion but is a good summary of some of the main questions the scientific community have about the government’s plans – what powers the HRA will have, which regulatory functions it will take… [Read more…]
September 27, 2011 by beckypurvis
The statutory instrument we’ve been waiting for to start setting up the new Health Research Authority (HRA) has been tabled today. Department of health press release here. I haven’t had time for a proper look yet to see what it looks like… This is the first step in creating the HRA. Establishing it as a… [Read more…]
August 15, 2011 by beckypurvis
The Human Tissue Authority’s latest newsletter just popped into my inbox and it has a few interesting bits of info on the planned changes to research regulators – in particular that the consultations we have been expecting on the future of the Human Fertilisation and Embryology Authority (HFEA) and HTA are expected in October or… [Read more…]
July 26, 2011 by beckypurvis
I just nipped over for a bit of the Human Tissue Authority’s (HTA) review of the year. Hot topic was the planned reorganisation of the regulation of health research in the UK and what this might mean for the HTA and the job it is doing now. Although the exact mechanics of the changes are… [Read more…]
May 30, 2011 by beckypurvis
After lots of discussion about the proposed new Health Research Regulatory Authority (this is the planned new single regulator of all health research across the UK) as the Public Bodies Bill went through the Lords, Lord Willis tabled a few questions to clarify what is happening next… The answers confirm that the research regulator will… [Read more…]
May 10, 2011 by beckypurvis
The public bodies bill had its third reading in the Lords yesterday afternoon, it’s now heading for debate in the Commons. A few amendments had been tabled to probe the government’s plans to reorganise the Human Fertilisation and Embryology Authority (HFEA) and the Human Tissue Authority (HTA) both of which have a role in regulating… [Read more…]
May 4, 2011 by beckypurvis
The public bodies bill, the bill the government has introduced to give them the power to reorganise the Human Fertilisation and Embryology Authority (HFEA) and the Human Tissue Authority (HTA) hits third reading in the Lords on Monday and there are a few amendments down on the HFEA and HTA. This will be the bills… [Read more…]
April 19, 2011 by beckypurvis
You may have seen some rather sensationally headlined coverage on the news this morning “IVF technique using three biological parents” “Three parent IVF”. This is referring to an IVF technique to avoid passing on mitochondrial disease. This is a treatment which is being researched but is not currently licensed. Andrew Lansley asked the HFEA to report… [Read more…]
March 6, 2012 by martinturner
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