How the new Accelerated Access Review survey on ‘I’ statements is helping “put the patient centre stage”
15 December 2015
The Accelerated Access Review (AAR) interim report has highlighted “putting the patient centre stage” as one of its five propositions. As part of ongoing engagement, a new short survey was launched last week which seeks views on proposed ‘I’ statements. These aim to describe what is important to people who use services and that represent principles reflecting the patient voice across the innovation pathway.
8 December 2015
Ed Owen, chief executive at Cystic Fibrosis Trust, who spoke at our annual conference in November, recaps the opportunities for charities that venture philanthropy holds.
The changing landscape for medical research and the role of patients - AMRC’s annual conference 2015
3 December 2015
This month, AMRC held its 29th annual conference which focused on the changing landscape for medial research and patient-centered collaborations. In this blog we recount the event highlights.
23 November 2015
Friday saw the start of the Children’s Commissioner’s Takeover Challenge which puts children and young people in charge. In this guest blog, Kate Harvey from the Nuffield Council on Bioethics reflects on two years of progress in involving children in the design and delivery of medical research.
9 November 2015
Last week, AMRC attended Partnering for Cures – the seventh annual meeting from the team at FasterCures. AMRC’s Aisling Burnand and Andy Clempson attended along with five AMRC members to fly the flag for UK charities. Here, Andy tells us more about the meeting and what the UK can learn from our colleagues across the pond!
2 November 2015
2014 was an outstanding year for the global biotech industry. Capital fundraising records were broken in the US and Europe, resulting in the highest ever total of £33bn. Furthermore, the UK was responsible for a substantial portion of the year’s success, a fact that was highlighted at BIA’s recent UK Bioscience Forum. The AMRC’s Sam Clark attended the event, and here he recaps some of the big issues covered…
15 October 2015
In light of the second reading of the Access to Medical Treatments (Innovation) Bill on Friday 16 October, our Chief Executive, Aisling Burnand, has written a blog highlighting our views on the Bill.
14 October 2015
Vivienne Parry, Head of Engagement at Genomics England discusses the complexities of the 100,000 genomes projects and what needs to be done to ensure there is a legacy from the project.
1 October 2015
AMRC and NIHR co-hosted an event this month- Getting the Most Out of Clinical Research. Take a look at our overview of the day and key themes drawn from the presentations and breakout sessions.
24 September 2015
Our new infographic ‘Medical Research Charities: investment; innovation; impact’ shows the extent of the charity sector's investment, the types of research it funds and some of the impacts resulting from this research.