23 June 2015
As the main phase of the 100,000 Genomes Project begins, Professor Mark Caulfield, Chief Scientist at Genomics England blogs about its clinical interpretation partnership (GeCIP). This is the way that academics, clinicians and those in training will work with Genomics England on the project to drive up clinical interpretation.
18 June 2015
On Friday 12 June, Rachel and I attended the 8th MRC Wellcome Trust Press Officers’ Conference. We wanted to share what we learned with other press, communications and public affairs teams. Take a look below.
17 June 2015
Last summer, the research, media and policy teams at Leukaemia & Lymphoma Research ran a workshop for all staff. The key aims were to make sure everyone working for the charity understood the research they did and knew how to handle questions from the public.
11 June 2015
The European Patients’ Forum (EPF) is calling for ‘Patient empowerment for a sustainable health system’ and is looking for examples of effective patient empowerment. EPF believes that empowering patients leads to better health outcomes, better patient satisfaction and services that are designed to meet the real needs of patients – a truly patient-centric approach. But they need evidence to show it works.
4 June 2015
On 3 June, AMRC chair Lord Sharkey took part in the House of Lords Queen's Speech debate - speaking on medical research and the NHS.
27 May 2015
The Charities Aid Foundation (CAF) has published its annual UK Giving Report, which looks at charitable donations across the UK in 2014.
14 May 2015
Clinical research involves balancing many ethical issues, and when that research is happening in children, the ‘ethics’ becomes more complex. But, this is no reason to not do this research – and the latest Nuffield Council on Bioethics report provides some excellent advice on the steps we all need to make.
1 May 2015
Over the last two years, Leukaemia & Lymphoma Research has been carrying out a large programme of work, called Patient Need, to provide an evidence base to maximise patient impact. In a guest post for our blog, Dr Matt Kaiser, head of research, describes the study, the findings and how understanding the needs of patients informs what the charity does, now and in the future.
1 April 2015
Autistica is the UK’s leading autism research charity, committed to funding research that will make a real difference to people’s lives. It's Autism Awareness Day on 2 April and in this blog Rebecca Sterry, communications manager for Autistica tells us about the work Austistica does to ensure that research involves the whole community.
11 March 2015
In this blog Vivienne Parry, head of engagement at Genomics England, tells us about the 100,000 Genome Project and the exciting results from its pilot stage.