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Medical research policy updates from the AMRC team
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Clinical Trials – proportionate regulation is necessary but not sufficient
Last week we gave evidence to the Science and Technology Committee on barriers facing clinical trials and possible solutions to increase their effectiveness.
Meaningful open access – it’s the way you tell it
March 13, 2013
Curiosity, clarity and conviction - top tips for accessible, engaging science writing
Research, Anyone?
January 11, 2013
Patients who want to be involved in clinical research aren't given enough opportunities, according to a mystery shopper exercise from NIHR. So how can we make the NHS commitment to improving access work in practice?
The death of IPR?
October 12, 2012
GlaxoSmithKline has announced it will open up anonymised data from clinical trials for further research. Shar Nebhrajani argues that openness can lead to more innovation, and asks: is it time for new models of intellectual property rights?
Early access to drugs – it’s welcome but we need more
October 9, 2012
We have responded to the MHRA's proposals to introduce an Early Access to Medicines Scheme
HFEA launches public consultation on mitochondrial disease
September 17, 2012
Today the Human Fertility and Embryology Authority has launched a public consultation to gather views about the social and ethical impact of making mitochondria transfer techniques available to patients
Speaking at the Caldicott review
July 12, 2012
Yesterday we gave evidence to the Caldicott information governance review - about the importance of safely sharing patient data for research.
Bioethics council report on techniques to treat mitochondrial diseases
June 14, 2012
The Nuffield Council on Bioethics have published the findings of their ethical review of novel techniques for the prevention of mitochondrial DNA disorders.
Clinical Practice Research Datalink launches
May 29, 2012
At AMRC, one of the things we regularly tell the government and other stakeholders is how keen patients are to be involved in research. At the last count 72% of the public told us they would like their doctor to offer them the chance to be involved in clinical trials. And yet apparently up to […]
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May 2, 2013
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