Today is Rare Disease Day - that's for diseases that affect fewer than 5 in 10,000 people. The Department of Health has launched proposals for a UK plan for rare diseases to improve services, treatment and support for people with rare diseases. The plan is open for consultation until 25 May.
February 29, 2012 by beckypurvis
Adam Afriyie asked a couple of interesting parliamentary questions about progress on the Life Sciences Strategy and recommendations to improve innovation in the NHS (announced on 5 December). The answers outline what's been done so far to put some of these plans into action.
February 24, 2012 by beckypurvis
Yesterday the Department of Health announced that Fiona Caldicott will lead an independent review of the balance between protecting patient information and its sharing, to improve patient care.
February 16, 2012 by beckypurvis
Who are the people behind research in the NHS? The NIHR Clinical Research Network has just set up a great website showing the different ways in which people are involved in research.
February 15, 2012 by beckypurvis
Our letter in the Times about the great news for the research sector in the ‘duty to promote research’ across the whole of the NHS.
February 15, 2012 by martinturner
Technologies that harness our knowledge of genetics are set to be increasingly important for health services, and the NHS needs to be prepared to take advantage.
February 15, 2012 by martinturner
Following up on the exciting news last week that Scotland has a new Chief Scientist, it was announced yesterday that a new Chief Scientific Advisor has also been appointed. Professor Muffy Calder will take up the position vacated by Professor Anne Glover last year. Muffy Calder is currently Professor of Computing Science and Dean of… [Read more…]
February 10, 2012 by beckypurvis
Lots happening in Scotland this week. Yesterday the Chief Scientist Office announced their new Chief Scientist – Andrew Morris. This is great news alongside the recently appointed Minister for Learning, Science and Scottish languages, Alasdair Allan, but we’re still waiting for the new Chief Scientific Adviser to the government to be announced, this post was… [Read more…]
February 7, 2012 by beckypurvis
The Ministry of Justice are calling for our views on Europe’s plans for new legislation covering data protection. Changes to EU data protection laws may have implications for medical research in the UK as they will govern how patient data can be handled. Patient data is a valuable resource for health research (for more on… [Read more…]
February 6, 2012 by martinturner
The AMRC office has been a busy place these past three weeks. Becky and I have been organising two big events for the All-Party Parliamentary Group (APPG) on Medical Research, a group of MPs and Peers with an interest in medical research. The group organises meetings bringing experts and active researchers and policy makers to… [Read more…]
February 29, 2012 by beckypurvis
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